Home » The PARIS Forums » PARIS: Main » This is the content of an email I received from a friend today.
| This is the content of an email I received from a friend today. [message #81167] |
Mon, 05 March 2007 08:48  |
excelav
Messages: 2130
Registered: July 2005
Location: Metro Detroit
|
Senior Member |
|
|
Hello All,
I just wanted to share a very serious story with everyone to remind all of
us that doctors aren't always what they're cracked up to be. And if you
ever find yourself, your children, family members or friends encountering
a health problem, please consider getting a second, if not third, opinion.
My friend Chris' 8 year old daughter was recently diagnosed with a brain
tumor. The tumor was one inch in size and located in a part of her brain
that could potentially have affected her speech and motor skills. She underwent
a 7 hour surgery last week to remove it and thank God they believe they got
all of it and it is considered low-grade and she will be consistantly monitored.
She recently came out of ICU and is doing incredibly well.
However, the journey/process that Chris & his wife had to go through to get
the correct diagnosis is frightening if not unbelievable/un-acceptable.
I just want to share a paragraph with all of you that I recently received
in an email from the family. If it wasn't for Chris and Amanda's persistence
on the matter, God only knows what could have/would have happened in young
Blair's future.
"Many of you have asked whether there were any symptoms prior to our discovery.Â
In October of last year Blair started complaining of headaches but we were
told it could not be a brain tumor and was most likely a reaction to the
lice shampoo we were using or a migraine. Three weeks later our pediatrician
told us that it was most likely a neck injury, maybe from soccer. We then
went to see a specialist who reassured us that this could not be a tumor
and was probably tension headaches. In January, when Blair started vomiting
as well as having headaches, we suggested that, if a tumor was out of the
question, meningitis might be a possibility. Â The pediatrician attributed
her condition to a stomach flu that was going around. When we returned
from Amanda's mother’s funeral we insisted on a CT scan which revealed
a one inch tumor in Blair’s cerebellum."
I think we all need to consider and learn from their experience, in that
none of us are infallible, not even the so-called professionals. A mistake
like this could have taken a very young child's life.
Take care, be well ,and God Bless.
Elaine
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| Re:OT - This is the content of an email I received from a friend today. [message #81172 is a reply to message #81167] |
Mon, 05 March 2007 10:41  |
Tony Benson
Messages: 453
Registered: June 2006
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Senior Member |
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Always get as many opinions as you can.
I was seriously ill when I was 13 (1977). 6 Major surgeries and 108 days in
the hospital. The first 5 surgeries were done by two different doctors.
During this time I had dropped from 120 lbs to 87lbs. After the fifth
surgery, my parents were told that they just had to be patient and it would
take time to for me to get better. Thank God they didn't trust the Doctors
by this time. They took me to another Doc for evaluation, and he referred me
to probably the top ENT surgeon in the country at the time. He knew exactly
what needed to be done and estimated that I maybe had a month to live
without having the correct surgery. One surgery, and nine days later I'm out
of the hospital, gaining weight, and basically totally cured. People tend to
think Doctors know everything, and evidently, many Doctors also think they
know everything. If the doctors I first went to had done some consultation,
I wouldn't have almost died. My parents trusted the system and assumed
people knew what they were doing. It's not always the case.
Anyway, sorry to ramble on, but if someone has symptoms that don't get
better in a reasonable amount of time, keep going to different doctors and
be suspicious of "wait and see" answers. Insist on definitive tests, scans,
x-rays, etc., even if you have to find a way to pay for them yourself.
Tony
"James McCloskey" <excelsm@hotmail.com> wrote in message
news:45ec3bce$1@linux...
>
> Hello All,
>
> I just wanted to share a very serious story with everyone to remind all of
> us that doctors aren't always what they're cracked up to be. And if you
> ever find yourself, your children, family members or friends encountering
> a health problem, please consider getting a second, if not third, opinion.
>
> My friend Chris' 8 year old daughter was recently diagnosed with a brain
> tumor. The tumor was one inch in size and located in a part of her brain
> that could potentially have affected her speech and motor skills. She
> underwent
> a 7 hour surgery last week to remove it and thank God they believe they
> got
> all of it and it is considered low-grade and she will be consistantly
> monitored.
> She recently came out of ICU and is doing incredibly well.
>
> However, the journey/process that Chris & his wife had to go through to
> get
> the correct diagnosis is frightening if not unbelievable/un-acceptable.
> I just want to share a paragraph with all of you that I recently received
> in an email from the family. If it wasn't for Chris and Amanda's
> persistence
> on the matter, God only knows what could have/would have happened in young
> Blair's future.
>
>
> "Many of you have asked whether there were any symptoms prior to our
> discovery.Â
> In October of last year Blair started complaining of headaches but we were
> told it could not be a brain tumor and was most likely a reaction to the
> lice shampoo we were using or a migraine. Three weeks later our
> pediatrician
> told us that it was most likely a neck injury, maybe from soccer. We then
> went to see a specialist who reassured us that this could not be a tumor
> and was probably tension headaches. In January, when Blair started
> vomiting
> as well as having headaches, we suggested that, if a tumor was out of the
> question, meningitis might be a possibility. Â The pediatrician attributed
> her condition to a stomach flu that was going around. When we returned
> from Amanda's motherâ?Ts funeral we insisted on a CT scan which revealed
> a one inch tumor in Blairâ?Ts cerebellum."
>
> I think we all need to consider and learn from their experience, in that
> none of us are infallible, not even the so-called professionals. A mistake
> like this could have taken a very young child's life.
>
> Take care, be well ,and God Bless.
>
> Elaine
>
>
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| Re: This is the content of an email I received from a friend today. [message #81175 is a reply to message #81167] |
Mon, 05 March 2007 11:15 |
Deej [4]
Messages: 1292
Registered: January 2007
|
Senior Member |
|
|
I'm in the process of paying off almost $1,000.00 in medical bills that our
insurance won't cover from Mayo Clinic summer before last because tese costs
are considered to be beyond the *reasonable and customary* fees charged by
other diagnostic facilities/hospitals. They billed our insurance company
over $50k and didn't find the problem...... our dentist did a year and a
half later.
..
"James McCloskey" <excelsm@hotmail.com> wrote in message
news:45ec3bce$1@linux...
>
> Hello All,
>
> I just wanted to share a very serious story with everyone to remind all of
> us that doctors aren't always what they're cracked up to be. And if you
> ever find yourself, your children, family members or friends encountering
> a health problem, please consider getting a second, if not third, opinion.
>
> My friend Chris' 8 year old daughter was recently diagnosed with a brain
> tumor. The tumor was one inch in size and located in a part of her brain
> that could potentially have affected her speech and motor skills. She
> underwent
> a 7 hour surgery last week to remove it and thank God they believe they
> got
> all of it and it is considered low-grade and she will be consistantly
> monitored.
> She recently came out of ICU and is doing incredibly well.
>
> However, the journey/process that Chris & his wife had to go through to
> get
> the correct diagnosis is frightening if not unbelievable/un-acceptable.
> I just want to share a paragraph with all of you that I recently received
> in an email from the family. If it wasn't for Chris and Amanda's
> persistence
> on the matter, God only knows what could have/would have happened in young
> Blair's future.
>
>
> "Many of you have asked whether there were any symptoms prior to our
> discovery.Â
> In October of last year Blair started complaining of headaches but we were
> told it could not be a brain tumor and was most likely a reaction to the
> lice shampoo we were using or a migraine. Three weeks later our
> pediatrician
> told us that it was most likely a neck injury, maybe from soccer. We then
> went to see a specialist who reassured us that this could not be a tumor
> and was probably tension headaches. In January, when Blair started
> vomiting
> as well as having headaches, we suggested that, if a tumor was out of the
> question, meningitis might be a possibility. Â The pediatrician attributed
> her condition to a stomach flu that was going around. When we returned
> from Amanda's motherâ?Ts funeral we insisted on a CT scan which revealed
> a one inch tumor in Blairâ?Ts cerebellum."
>
> I think we all need to consider and learn from their experience, in that
> none of us are infallible, not even the so-called professionals. A mistake
> like this could have taken a very young child's life.
>
> Take care, be well ,and God Bless.
>
> Elaine
>
>
|
|
|
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| Re: This is the content of an email I received from a friend today. [message #81176 is a reply to message #81175] |
Mon, 05 March 2007 11:16 |
Deej [4]
Messages: 1292
Registered: January 2007
|
Senior Member |
|
|
> I'm in the process of paying off almost $1,000.00 in medical bills that
typo.......make that almost $10,000.00....etc.
"DJ" <www.aarrrrggghhh!!!.com> wrote in message news:45ec6c7c@linux...
> I'm in the process of paying off almost $1,000.00 in medical bills that
> our insurance won't cover from Mayo Clinic summer before last because tese
> costs are considered to be beyond the *reasonable and customary* fees
> charged by other diagnostic facilities/hospitals. They billed our
> insurance company over $50k and didn't find the problem...... our dentist
> did a year and a half later.
>
> .
> "James McCloskey" <excelsm@hotmail.com> wrote in message
> news:45ec3bce$1@linux...
>>
>> Hello All,
>>
>> I just wanted to share a very serious story with everyone to remind all
>> of
>> us that doctors aren't always what they're cracked up to be. And if you
>> ever find yourself, your children, family members or friends encountering
>> a health problem, please consider getting a second, if not third,
>> opinion.
>>
>> My friend Chris' 8 year old daughter was recently diagnosed with a brain
>> tumor. The tumor was one inch in size and located in a part of her brain
>> that could potentially have affected her speech and motor skills. She
>> underwent
>> a 7 hour surgery last week to remove it and thank God they believe they
>> got
>> all of it and it is considered low-grade and she will be consistantly
>> monitored.
>> She recently came out of ICU and is doing incredibly well.
>>
>> However, the journey/process that Chris & his wife had to go through to
>> get
>> the correct diagnosis is frightening if not unbelievable/un-acceptable.
>> I just want to share a paragraph with all of you that I recently received
>> in an email from the family. If it wasn't for Chris and Amanda's
>> persistence
>> on the matter, God only knows what could have/would have happened in
>> young
>> Blair's future.
>>
>>
>> "Many of you have asked whether there were any symptoms prior to our
>> discovery.Â
>> In October of last year Blair started complaining of headaches but we
>> were
>> told it could not be a brain tumor and was most likely a reaction to the
>> lice shampoo we were using or a migraine. Three weeks later our
>> pediatrician
>> told us that it was most likely a neck injury, maybe from soccer. We
>> then
>> went to see a specialist who reassured us that this could not be a tumor
>> and was probably tension headaches. In January, when Blair started
>> vomiting
>> as well as having headaches, we suggested that, if a tumor was out of the
>> question, meningitis might be a possibility. Â The pediatrician
>> attributed
>> her condition to a stomach flu that was going around. When we returned
>> from Amanda's motherâ?Ts funeral we insisted on a CT scan which revealed
>> a one inch tumor in Blairâ?Ts cerebellum."
>>
>> I think we all need to consider and learn from their experience, in that
>> none of us are infallible, not even the so-called professionals. A
>> mistake
>> like this could have taken a very young child's life.
>>
>> Take care, be well ,and God Bless.
>>
>> Elaine
>>
>>
>
>
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| Re: This is the content of an email I received from a friend today. [message #81177 is a reply to message #81175] |
Mon, 05 March 2007 11:30 |
rick
Messages: 1976
Registered: February 2006
|
Senior Member |
|
|
what's even funnier is that the insurance companies tell the doctors
what procedures they'll pay for and ones they won't based on
percentages of anecdotal occurrences... even if the doctors suspect
it's something else and it falls under the expertise of another
category (neural, osteo etc.) they won't pay. if the doctors persist
in going outside the parameters set by the insurance co's then all
payments are suspended. cool system huh.
On Mon, 5 Mar 2007 12:15:34 -0700, "DJ" <www.aarrrrggghhh!!!.com>
wrote:
>I'm in the process of paying off almost $1,000.00 in medical bills that our
>insurance won't cover from Mayo Clinic summer before last because tese costs
>are considered to be beyond the *reasonable and customary* fees charged by
>other diagnostic facilities/hospitals. They billed our insurance company
>over $50k and didn't find the problem...... our dentist did a year and a
>half later.
>
>.
>"James McCloskey" <excelsm@hotmail.com> wrote in message
>news:45ec3bce$1@linux...
>>
>> Hello All,
>>
>> I just wanted to share a very serious story with everyone to remind all of
>> us that doctors aren't always what they're cracked up to be. And if you
>> ever find yourself, your children, family members or friends encountering
>> a health problem, please consider getting a second, if not third, opinion.
>>
>> My friend Chris' 8 year old daughter was recently diagnosed with a brain
>> tumor. The tumor was one inch in size and located in a part of her brain
>> that could potentially have affected her speech and motor skills. She
>> underwent
>> a 7 hour surgery last week to remove it and thank God they believe they
>> got
>> all of it and it is considered low-grade and she will be consistantly
>> monitored.
>> She recently came out of ICU and is doing incredibly well.
>>
>> However, the journey/process that Chris & his wife had to go through to
>> get
>> the correct diagnosis is frightening if not unbelievable/un-acceptable.
>> I just want to share a paragraph with all of you that I recently received
>> in an email from the family. If it wasn't for Chris and Amanda's
>> persistence
>> on the matter, God only knows what could have/would have happened in young
>> Blair's future.
>>
>>
>> "Many of you have asked whether there were any symptoms prior to our
>> discovery.Â
>> In October of last year Blair started complaining of headaches but we were
>> told it could not be a brain tumor and was most likely a reaction to the
>> lice shampoo we were using or a migraine. Three weeks later our
>> pediatrician
>> told us that it was most likely a neck injury, maybe from soccer. We then
>> went to see a specialist who reassured us that this could not be a tumor
>> and was probably tension headaches. In January, when Blair started
>> vomiting
>> as well as having headaches, we suggested that, if a tumor was out of the
>> question, meningitis might be a possibility. Â The pediatrician attributed
>> her condition to a stomach flu that was going around. When we returned
>> from Amanda's motherâ?Ts funeral we insisted on a CT scan which revealed
>> a one inch tumor in Blairâ?Ts cerebellum."
>>
>> I think we all need to consider and learn from their experience, in that
>> none of us are infallible, not even the so-called professionals. A mistake
>> like this could have taken a very young child's life.
>>
>> Take care, be well ,and God Bless.
>>
>> Elaine
>>
>>
>
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| Re: This is the content of an email I received from a friend today. [message #81183 is a reply to message #81177] |
Mon, 05 March 2007 18:24 |
Ted Gerber
Messages: 705
Registered: January 2009
|
Senior Member |
|
|
Don't get me started on Insurance Companies-
Beginning in Sept 00, my wife went from teaching back to back spinning classes
to
being flat on her back for 5 months, after a seemingly innocent incident
where she
was run over by a large dog. After 2 plus years of slow recovery, we bought
a new
exercise bike for her that had a seat one inch wider than the previous bike.
Within a
week, she was flat on her back again in debilitating pain. At that point,
we went to
our Insurance Co who sent an adjuster out who literally ciried when she heard
MJ's
story, assuring us that the $50k we had spent on treatments (including specialized
ones in NY) plus the lost income form her being unable to work would all
be
recouped. 2 months later we discovered that this adjuster had been pulled
off
the case and that the claim was being denied. They declared that my wife
was
faking. 2 years later, after an exhausting legal campaign that culminated
in seeing
top experts in soft tissue pain disorders at Yale Medical, we settled through
a mediator for the original amount that we had all agreed on. Except they
had to pay
an additional 60K for their (and our) lawyers. According to an industry insider
Insurance companies will routinely turn down 40-50% of legit claims, because
they
know that of that percentage, a predictable amount of claimants will give
up.
My wife is still far from normal physical function
Rats, I got started
Ted
rick <parnell68@hotmail.com> wrote:
>what's even funnier is that the insurance companies tell the doctors
>what procedures they'll pay for and ones they won't based on
>percentages of anecdotal occurrences... even if the doctors suspect
>it's something else and it falls under the expertise of another
>category (neural, osteo etc.) they won't pay. if the doctors persist
>in going outside the parameters set by the insurance co's then all
>payments are suspended. cool system huh.
>
>On Mon, 5 Mar 2007 12:15:34 -0700, "DJ" <www.aarrrrggghhh!!!.com>
>wrote:
>
>>I'm in the process of paying off almost $1,000.00 in medical bills that
our
>>insurance won't cover from Mayo Clinic summer before last because tese
costs
>>are considered to be beyond the *reasonable and customary* fees charged
by
>>other diagnostic facilities/hospitals. They billed our insurance company
>>over $50k and didn't find the problem...... our dentist did a year and
a
>>half later.
>>
>>.
>>"James McCloskey" <excelsm@hotmail.com> wrote in message
>>news:45ec3bce$1@linux...
>>>
>>> Hello All,
>>>
>>> I just wanted to share a very serious story with everyone to remind all
of
>>> us that doctors aren't always what they're cracked up to be. And if you
>>> ever find yourself, your children, family members or friends encountering
>>> a health problem, please consider getting a second, if not third, opinion.
>>>
>>> My friend Chris' 8 year old daughter was recently diagnosed with a brain
>>> tumor. The tumor was one inch in size and located in a part of her brain
>>> that could potentially have affected her speech and motor skills. She
>>> underwent
>>> a 7 hour surgery last week to remove it and thank God they believe they
>>> got
>>> all of it and it is considered low-grade and she will be consistantly
>>> monitored.
>>> She recently came out of ICU and is doing incredibly well.
>>>
>>> However, the journey/process that Chris & his wife had to go through
to
>>> get
>>> the correct diagnosis is frightening if not unbelievable/un-acceptable.
>>> I just want to share a paragraph with all of you that I recently received
>>> in an email from the family. If it wasn't for Chris and Amanda's
>>> persistence
>>> on the matter, God only knows what could have/would have happened in
young
>>> Blair's future.
>>>
>>>
>>> "Many of you have asked whether there were any symptoms prior to our
>>> discovery.Â
>>> In October of last year Blair started complaining of headaches but we
were
>>> told it could not be a brain tumor and was most likely a reaction to
the
>>> lice shampoo we were using or a migraine. Three weeks later our
>>> pediatrician
>>> told us that it was most likely a neck injury, maybe from soccer. We
then
>>> went to see a specialist who reassured us that this could not be a tumor
>>> and was probably tension headaches. In January, when Blair started
>>> vomiting
>>> as well as having headaches, we suggested that, if a tumor was out of
the
>>> question, meningitis might be a possibility. Â The pediatrician attributed
>>> her condition to a stomach flu that was going around. When we returned
>>> from Amanda's motherâ?Ts funeral we insisted on a CT scan which revealed
>>> a one inch tumor in Blairâ?Ts cerebellum."
>>>
>>> I think we all need to consider and learn from their experience, in that
>>> none of us are infallible, not even the so-called professionals. A mistake
>>> like this could have taken a very young child's life.
>>>
>>> Take care, be well ,and God Bless.
>>>
>>> Elaine
>>>
>>>
>>
>
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| Re: This is the content of an email I received from a friend today. [message #81185 is a reply to message #81183] |
Mon, 05 March 2007 21:35 |
brandon[2]
Messages: 380
Registered: June 2006
|
Senior Member |
|
|
JAmes,
It sounds like they thought it was a brain tumor from the beginning.
What made them think that?
I have had a similar experience with getting a diagnosis.
Since I was young I had heart problems.
My family has a history of heart problems.
I went to many doctors complaining of heart issues.
NONE of them believed me.
One of them actually gave me a card to a phychologist.
I was pissed that day.
Eventually as I got older the "possiblility" that
I actually could have a heart problem got higher so the doctors started listening.
I finally got a stress test done and my heart was all over the place with
palpitations.
The doctor aknowledged them , but for some reason played it down as no big
deal. I could feel these palpitations go by each time they happend...and
he sat there playing a game with me like not beleiving I could feel them
or something.
He said they were not serious and if I wanted I could take medication. But
he said it in a way that was like "well if you are a pussy you could take
medicine". So at least I finally got aknowledgement and was diagnosed with
palpitations.
The whole thing of no one not beleiving me all thru out my young years I
beleive messed me up mentally in some ways, because I doubted myself and
it gave me issues I may not have otherwise had. My point.... If you know
somewhere inside that you have a certain problem dont take no for an answer.
Go to as many doctors as it takes to get to the bottom of it.
b
"Ted Gerber" <tedgerber@rogers.com> wrote:
>
>Don't get me started on Insurance Companies-
>
>Beginning in Sept 00, my wife went from teaching back to back spinning classes
>to
>being flat on her back for 5 months, after a seemingly innocent incident
>where she
>was run over by a large dog. After 2 plus years of slow recovery, we bought
>a new
>exercise bike for her that had a seat one inch wider than the previous bike.
>Within a
>week, she was flat on her back again in debilitating pain. At that point,
>we went to
>our Insurance Co who sent an adjuster out who literally ciried when she
heard
>MJ's
>story, assuring us that the $50k we had spent on treatments (including specialized
>ones in NY) plus the lost income form her being unable to work would all
>be
>recouped. 2 months later we discovered that this adjuster had been pulled
>off
>the case and that the claim was being denied. They declared that my wife
>was
>faking. 2 years later, after an exhausting legal campaign that culminated
>in seeing
>top experts in soft tissue pain disorders at Yale Medical, we settled through
>a mediator for the original amount that we had all agreed on. Except they
>had to pay
>an additional 60K for their (and our) lawyers. According to an industry
insider
>Insurance companies will routinely turn down 40-50% of legit claims, because
>they
>know that of that percentage, a predictable amount of claimants will give
>up.
>My wife is still far from normal physical function
>
>Rats, I got started
>
>Ted
>
>rick <parnell68@hotmail.com> wrote:
>>what's even funnier is that the insurance companies tell the doctors
>>what procedures they'll pay for and ones they won't based on
>>percentages of anecdotal occurrences... even if the doctors suspect
>>it's something else and it falls under the expertise of another
>>category (neural, osteo etc.) they won't pay. if the doctors persist
>>in going outside the parameters set by the insurance co's then all
>>payments are suspended. cool system huh.
>>
>>On Mon, 5 Mar 2007 12:15:34 -0700, "DJ" <www.aarrrrggghhh!!!.com>
>>wrote:
>>
>>>I'm in the process of paying off almost $1,000.00 in medical bills that
>our
>>>insurance won't cover from Mayo Clinic summer before last because tese
>costs
>>>are considered to be beyond the *reasonable and customary* fees charged
>by
>>>other diagnostic facilities/hospitals. They billed our insurance company
>
>>>over $50k and didn't find the problem...... our dentist did a year and
>a
>>>half later.
>>>
>>>.
>>>"James McCloskey" <excelsm@hotmail.com> wrote in message
>>>news:45ec3bce$1@linux...
>>>>
>>>> Hello All,
>>>>
>>>> I just wanted to share a very serious story with everyone to remind
all
>of
>>>> us that doctors aren't always what they're cracked up to be. And if
you
>>>> ever find yourself, your children, family members or friends encountering
>>>> a health problem, please consider getting a second, if not third, opinion.
>>>>
>>>> My friend Chris' 8 year old daughter was recently diagnosed with a brain
>>>> tumor. The tumor was one inch in size and located in a part of her brain
>>>> that could potentially have affected her speech and motor skills. She
>
>>>> underwent
>>>> a 7 hour surgery last week to remove it and thank God they believe they
>
>>>> got
>>>> all of it and it is considered low-grade and she will be consistantly
>
>>>> monitored.
>>>> She recently came out of ICU and is doing incredibly well.
>>>>
>>>> However, the journey/process that Chris & his wife had to go through
>to
>>>> get
>>>> the correct diagnosis is frightening if not unbelievable/un-acceptable.
>>>> I just want to share a paragraph with all of you that I recently received
>>>> in an email from the family. If it wasn't for Chris and Amanda's
>>>> persistence
>>>> on the matter, God only knows what could have/would have happened in
>young
>>>> Blair's future.
>>>>
>>>>
>>>> "Many of you have asked whether there were any symptoms prior to our
>
>>>> discovery.Â
>>>> In October of last year Blair started complaining of headaches but we
>were
>>>> told it could not be a brain tumor and was most likely a reaction to
>the
>>>> lice shampoo we were using or a migraine. Three weeks later our
>>>> pediatrician
>>>> told us that it was most likely a neck injury, maybe from soccer. We
>then
>>>> went to see a specialist who reassured us that this could not be a tumor
>>>> and was probably tension headaches. In January, when Blair started
>>>> vomiting
>>>> as well as having headaches, we suggested that, if a tumor was out of
>the
>>>> question, meningitis might be a possibility. Â The pediatrician attributed
>>>> her condition to a stomach flu that was going around. When we returned
>>>> from Amanda's motherâ?Ts funeral we insisted on a CT scan which revealed
>>>> a one inch tumor in Blairâ?Ts cerebellum."
>>>>
>>>> I think we all need to consider and learn from their experience, in
that
>>>> none of us are infallible, not even the so-called professionals. A mistake
>>>> like this could have taken a very young child's life.
>>>>
>>>> Take care, be well ,and God Bless.
>>>>
>>>> Elaine
>>>>
>>>>
>>>
>>
>
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| Re: This is the content of an email I received from a friend today. [message #81190 is a reply to message #81167] |
Tue, 06 March 2007 00:31 |
excelav
Messages: 2130
Registered: July 2005
Location: Metro Detroit
|
Senior Member |
|
|
Read this.
http://www.msnbc.msn.com/id/17472281/site/newsweek/
"James McCloskey" <excelsm@hotmail.com> wrote:
>
>Hello All,
>
>I just wanted to share a very serious story with everyone to remind all
of
>us that doctors aren't always what they're cracked up to be. And if you
>ever find yourself, your children, family members or friends encountering
>a health problem, please consider getting a second, if not third, opinion.
>
>My friend Chris' 8 year old daughter was recently diagnosed with a brain
>tumor. The tumor was one inch in size and located in a part of her brain
>that could potentially have affected her speech and motor skills. She underwent
>a 7 hour surgery last week to remove it and thank God they believe they
got
>all of it and it is considered low-grade and she will be consistantly monitored.
>She recently came out of ICU and is doing incredibly well.
>
>However, the journey/process that Chris & his wife had to go through to
get
>the correct diagnosis is frightening if not unbelievable/un-acceptable.
>I just want to share a paragraph with all of you that I recently received
>in an email from the family. If it wasn't for Chris and Amanda's persistence
>on the matter, God only knows what could have/would have happened in young
>Blair's future.
>
>
>"Many of you have asked whether there were any symptoms prior to our discovery.Â
>In October of last year Blair started complaining of headaches but we were
>told it could not be a brain tumor and was most likely a reaction to the
>lice shampoo we were using or a migraine. Three weeks later our pediatrician
>told us that it was most likely a neck injury, maybe from soccer. We then
>went to see a specialist who reassured us that this could not be a tumor
>and was probably tension headaches. In January, when Blair started vomiting
>as well as having headaches, we suggested that, if a tumor was out of the
>question, meningitis might be a possibility. Â The pediatrician attributed
>her condition to a stomach flu that was going around. When we returned
>from Amanda's mother’s funeral we insisted on a CT scan which revealed
>a one inch tumor in Blair’s cerebellum."
>
>I think we all need to consider and learn from their experience, in that
>none of us are infallible, not even the so-called professionals. A mistake
>like this could have taken a very young child's life.
>
>Take care, be well ,and God Bless.
>
>Elaine
>
>
|
|
|
|
| Re: This is the content of an email I received from a friend today. [message #81198 is a reply to message #81167] |
Tue, 06 March 2007 02:40 |
Sarah
Messages: 608
Registered: February 2007
|
Senior Member |
|
|
Yes, diagnostic tests are expensive, so thanks in part to insurance company
pressure, practitioners are often opting to "keep an eye on it" for a while,
and give patients and families optimistic speculation.
My advice . . . never accept "it's probably just . . . " Ask what the worst
possibilities might be, then ask how those are ruled out, then insist that
they be ruled out. Our health care system is a mess right now, I believe we
rank 34th in the world, believe it or not, so patients and their families
really need to be their own advocates and insist on good, thorough care.
Sarah Burke RN
"James McCloskey" <excelsm@hotmail.com> wrote in message
news:45ec3bce$1@linux...
>
> Hello All,
>
> I just wanted to share a very serious story with everyone to remind all of
> us that doctors aren't always what they're cracked up to be. And if you
> ever find yourself, your children, family members or friends encountering
> a health problem, please consider getting a second, if not third, opinion.
>
> My friend Chris' 8 year old daughter was recently diagnosed with a brain
> tumor. The tumor was one inch in size and located in a part of her brain
> that could potentially have affected her speech and motor skills. She
> underwent
> a 7 hour surgery last week to remove it and thank God they believe they
> got
> all of it and it is considered low-grade and she will be consistantly
> monitored.
> She recently came out of ICU and is doing incredibly well.
>
> However, the journey/process that Chris & his wife had to go through to
> get
> the correct diagnosis is frightening if not unbelievable/un-acceptable.
> I just want to share a paragraph with all of you that I recently received
> in an email from the family. If it wasn't for Chris and Amanda's
> persistence
> on the matter, God only knows what could have/would have happened in young
> Blair's future.
>
>
> "Many of you have asked whether there were any symptoms prior to our
> discovery.Â
> In October of last year Blair started complaining of headaches but we were
> told it could not be a brain tumor and was most likely a reaction to the
> lice shampoo we were using or a migraine. Three weeks later our
> pediatrician
> told us that it was most likely a neck injury, maybe from soccer. We then
> went to see a specialist who reassured us that this could not be a tumor
> and was probably tension headaches. In January, when Blair started
> vomiting
> as well as having headaches, we suggested that, if a tumor was out of the
> question, meningitis might be a possibility. Â The pediatrician attributed
> her condition to a stomach flu that was going around. When we returned
> from Amanda's motherâ?Ts funeral we insisted on a CT scan which revealed
> a one inch tumor in Blairâ?Ts cerebellum."
>
> I think we all need to consider and learn from their experience, in that
> none of us are infallible, not even the so-called professionals. A mistake
> like this could have taken a very young child's life.
>
> Take care, be well ,and God Bless.
>
> Elaine
>
>
|
|
|
|
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